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As a strategy to help successfully manage the signs and symptoms of scleroderma, and as a way for patients to stay informed about medical treatments and lifestyle choices that effectively relieve or delay the progress of disease symptoms, many new patients find it helpful to seek support from other people diagnosed with scleroderma.  It is important that scleroderma patients receive good medical care and support from as many different sources as possible:  health care professionals, family and friends, and others living with scleroderma.  Knowing that one is not alone in their diagnosis and management of a chronic systemic autoimmune disease may be helpful, as it provides the opportunity to build connections with others who are learning to manage, with scleroderma, the variety of issues that affect their daily lives.

   Click here to download a copy of the Scleroderma Society of Ontario's brochure "Supporting Persons with Scleroderma at Home, Work & School".

Location Name Telephone / E-Mail
Belle River
Kandy Kurkcuyan (519) 979-6447
     
Brantford Fran Wolff

(519) 752-6648

kwolff1@rogers.com

     
Haldimand Irene Goodale

(905) 765-0818

imgood@shaw.ca

     
Halton John Littler (905) 849-8356
     
Hamilton

Isabel Sevsek

(905) 388-4337

d.sevsek@shaw.ca

     
London Bea Kiekens

(519) 641-6275

kieksjb@rogers.com

     

London
Bill Birtch

(519) 281-8143

wbirtch@rogers.com

     
Midland/Orillia Jeannette Brunelle

(705) 526-9869

nettebrunelle@sympatico.ca

     
Mississauga Vidas Vapsva

(905) 822-7868

vapsva@rogers.ca

     
Niagara/St. Catharines Barry Toth

(905) 646-8064

btoth@mergetel.com

     
North Durham Steve & Karen Alberti

(705) 432-2487

stevelbrt432@gmail.com

     
Ottawa Aline Laporte

(613) 745-7829

sclero@rogers.com

     
Pembroke Ralph Bergsma

(613) 735-3313

rbergsma@sympatico.ca

     
Sarnia Susan Dunn (519) 541-1064
     
Scarborough Naana Daniels

(905) 686-7265

naanash67@yahoo.com

     
Thunder Bay Rose Marie McCracken (807) 344-8345
     
Tillsonburg Julie Desplenter

(519) 842-3451

wjdesplenter@kwic.com

     
Toronto Kaarina Rennie

1-888-776-7776

sclerogrrl@yahoo.ca


 

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Scleroderma Society of Ontario
136 Kenilworth Avenue North
Hamilton, Ontario
L8H 4R8

(Located within Tim Horton's)

Phone: (905)544-0343
Toll Free: 1-888-776-7776

 
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