Past Events
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A Night at the Oscars!
On April 22nd the grade 8 Students of Castlefrank Elementary School held their own interpretation of the Oscars. The night was extremely successful with over 200 guests, paparazzi, "celebrities" and beloved movie characters. Our class made over $1600.00 for the Scleroderma Society of Ontario. We cannot thank our sponsors enough for the donations they made to help make our night come alive; our teachers Mrs. Robertson & Mrs. Hyde for supporting and guiding us through the adventure and Mr. Kucerak and Mr. Ferguson for teaching us how to be great entrepreneurs. Finally, a thank you to Mrs. Headley for coming to talk to us about Scleroderma, and her own struggles with persevering with scleroderma for almost ten years. A big thanks to the entire class of 8A for all your work and dedication. This has been an unforgettable experience and we hope that this money is one step closer to finding a cure for Scleroderma.
Megan Bertrim & Abbie Garwood, Grade 8, Castlefrank Elementary School.
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4th Annual Mississauga Gala
Congratulations to the Mississauga Support Group for another fun filled and successful night! Wonderful entertainment including Canada's own Micheal Burgess, dinner and dancing kept everyone in a festive mood. Thanks to everyone's generousity the evening raised over $70,000.00 for Scleroderma Research!
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Disneyland Half Marathon
January 10th, 2009
On August 31, 2008 Lynn Brunelle will be running the Disneyland Half Marathon and the Disney World Half Marathon on Jan 10, 2009, to raise awareness and funds for a disease close to her family. Lynn's mom, Jeannette, was diagnosed with Scleroderma in 1996. Through many ups and downs with the disease her Mom has stayed positive continuing to push herself no matter the pain and limitations. Jeannette has been an influence on others by being a shoulder for those newly diagnosed, and staying active in her community.
For the story on why Lynn chose Disneyland, visit the Scleroderma Ontario Forum here.
NEW! Make a donation online in support of Lynn here: Canada Helps
To make a donation in the name of Jeannette, download our donation form. Make sure to include: "Disneyland Half Marathon 2008/2009, donation in the name of Jeannette."
Read the Midland Mirror Article on Lynn Brunelle's meaning run.
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Queen’s Park Reception for MPP’s
WHERE: Queen’s Park Dining Room
WHEN: Tuesday, November 18th, 2008 @ 5:30 to 7:30 pm
WHO: SSO Members and supporters
WHY: Scleroderma Awareness & Education
Attendance is limited, and registration (free) is required to attend this event. If you or family/friends are considering attending, please register by November 11, 2008. Please feel free to invite family members and/or friends to join us.
Transportation: Bus transportation will be available for those who request this option with their registration. The bus will originate from Lime Ridge Mall (Hamilton), stopping at Oakville Place (Oakville), and then one more stop at Sherway Gardens (Etobicoke). Once details are finalized we will forward the exact location and time of bus pick-ups. We anticipate that the bus will leave Lime Ridge at 3:30pm. The bus will bring us all back with the same stops, departing Queen's Park at 8:00pm. If you are outside of these regions, and require transportation, please contact our head office at 1-888-776-7776 or 905-544-0343.
Parking Details: Public parking is not available at Queen’s Park. Public parking lots are located in the vicinity. Parking is at the cost of the attendees driving.
Map @ http://www.toronto.com/attractions/listing/124364
Disclosure: This event, in the Legislative Dining Room, could be moved or cancelled if any Legislative Assembly business arises and this room is required.
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London Group
Fall Meeting
Saturday, October 18, 2008
2:00 – 4:00 p.m.
Everyone welcome
Good Shepherd Lutheran Church, 522 Fanshawe Rd. E
(West of Adelaide beside Home Depot)
Speaker
Dr. Warren Nielson
Psychologist, Clinical Director, Rheumatology Day Programs,
St. Joseph’s Hospital
Coping With Scleroderma
We will also be looking for input as to how we can best meet your needs so please come prepared with lots of ideas.
For more information contact:
Bea Kiekens – 519 641-6275 kieksjb@rogers.com
or
Bill Birtch – 519 281-8143 wbirtch@rogers.com
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OTTAWA
Sept. 19th, 20th, 21st, 2008
The SCLERODERMA SOCIETY OF CANADA with the help of the CANADIAN SCLERODERMA RESEARCH GROUP will hold this weekend SEMINAR at the Crown Plaza Hotel, Ottawa.
The Scleroderma Society of Canada , The Scleroderma Society of Ontario and The Scleroderma Society of Quebec will also hold their annual meetings this weekend at this hotel.
There will be a mountain of information available as well as speakers usually from across Canada and the USA with the most recent research details and progress being made to find the illusive cure.
More information will follow.
Peter (905) 730-0731
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5th Annual David S Sidney Brown Charity Classic
September 18th 2008
Glen Cedars Golf Club, Pickering Ontario
Golf and/or Dinner
Registration 11:00am
BBQ Lunch 11:15am
Shotgun Start 12:15pm
Dinner 6:00pm
Contact: Dianne Brown at dianne@sidneygroup.ca or (416) 499-4380.
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Bike to Beat Scleroderma
On June 9th, Adam and Nataly Woolfrey will begin a 2500km bicycle ride across Canada's East Coast to raise awareness and research funding for Scleroderma.
Why are they riding?
Nataly's mother was diagnosed with Scleroderma 6 years ago. Nataly has been involved with the SSO for several years and has seen first hand their fundraising effort go directly to advancing Scleroderma research and awareness.
To donate to the "Bike to Beat Scleroderma" download our donation form here. Make sure to include: "Bike to Beat Scleroderma."
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Pembroke Walk And Talk in Memory of Ina Nagle
Saturday, June 14, 2008
Pembroke, Marina
Silent Auction at 10:00am, Walk will start at 11:00am
Contact: C Stager (613 732-0046)
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WALK with COLBY
Saturday June 21st, 2008
Merrickville Legion Branch 245
Will be starting at 11am with a BBQ, all proceeds of the BBQ, and donations going to the Scleroderma Research.
Contact: boal-5@hotmail.com
Update: This event raised $8636.00
Congratulations! All proceeds will go to Scleroderma Research
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Susie is a gifted political artist in her late twenties. After countless doctor's appointments, she is diagnosed with Scleroderma, an illness that is rare, fickle and can be debilitating. Through unexpected circumstances she meets Blake a promising and intense skier who wants to devote his all to Susie if she'll only do the same back. Together they face challenges neither of them ever expected.
St. Vladimir's Theatre @ 620 Spadina Avenue (South of Harbord)
Tickets: $10
Wednesday July 2nd, 10:30pm
Saturday July 5th, 5:45pm
Sunday July 6th, 1:45pm
Tuesday July 8th, 3:15pm
Wednesday July 9th, 9:45pm
Friday July 11th, 8pm
Saturday July 12th, 12pm
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Hamilton Walk 'n Talk
Saturday June 7th, 2008
T. B. McQUESTEN PARK
Upper Wentworth St. just off Lincoln Alexander Parkway
Registration at 10:00am
Walk starts at 11:00am.
Food, beverages, draw prizes, capital prizes, music and fun for the whole family.
Contact: peterwoolcott@symaptico.ca
Update: This event raised $101,971.50
Congratulations to the Hamilton Support Group.
We look forward to next year's event.
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Guest Speaker
Dr. Janet Pope - Medical Advisor for SSO
London Support Group Meeting
Saturday June 7, 2008 - 2:00 to 4:00 p.m.
Good Shepherd Lutheran Church
522 Fanshaw Road East, London (west of Adelaide St.)
All Scleroderma patients, family and friends welcome
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Walk in Memory of Kathryn Stillaway
Sunday June 1st, 2008
Ken Reid Conservation Area
277 Kenreid Road, Lindsay
Registration at 10:00am, Walk at 11:00am, Fun, Giveaways, BBQ and a Band
Contact Kristina Hickson (705) 953-9123
email krissyhickson@hotmail.com
Update: This event raised $8810.67
Great Job!
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Pembroke Fundraisers
Barbeque Days
May 24, 2008 at Pembroke Rona-Cashway
May 31, 2008 at Pembroke Wal-Mart
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Scleroderma Day Program
When: May 5 - May 16, 2008
Where: St. Joseph's Health Care, London, Ontario
Who: Contact Vicky Bossenberry
Beryl & Richard Ivey Rheumatology Day Programs St. Joseph's Health Care
268 Grosvenor Street
London, Ontario, N6A 4V2
Phone: 519.646.6000 ext. 66340
Fax: 519.646.6317
Email: vicky.bossenberry@sjhc.london.on.ca
Further Details:
This is a two week, multidisciplinary group for people with scleroderma. A preliminary assessment appointment is required.
Also, a physician referral as well as a consult note.
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Webcast, Patient Power®
"Living with Scleroderma,"
Thursday, April 17th
WHAT: Webcast – "Patient Power" with Andrew Schorr at www.patientpower.info.
Scleroderma is a chronic autoimmune disease that severely affects the skin, blood vessels, and connective tissue. While there is currently no cure for scleroderma, ongoing research efforts and new treatments are emerging, and scientists are optimistic. Join us for this webcast with expert Dr. Art Theodore, a nationally recognized physician who focuses on systemic sclerosis and interstitial lung disease. Dr. Theodore will answer your questions live, as well as discuss new treatments and experimental therapy for scleroderma. Call in with your questions live!
WHO (FEATURED GUESTS):
Arthur C. Theodore, M.D.: Director of the Medical Intensive Care Unit, Boston Medical Center
Andrew Schorr: Host and eleven-year CLL survivor
WHEN: Thursday, April 17, 2008 from 12:00 pm – 1:00 pm Central Time
HOW TO PARTICIPATE:
Listen live at www.patientpower.info (Click the PARTICIPATE button to listen) Call in live, or e-mail questions to questions@patientpower.info
ABOUT PATIENT POWER:
Patient Power debuted in February 2005 and is a weekly show hosted by Andrew Schorr, eleven-year leukemia survivor, patient educator and patient advocate. The show features renowned medical experts on topics that include cancer, pain, diabetes, and heart specialists, as well as experts in clinical trials and top pharmacists. The show serves to bring patients together in a radio and Internet community to help navigate an often inhospitable healthcare system. Patient Power takes questions from callers and Internet listeners on topics such as how to find the right doctor, how to advocate for effectively, when to get a second opinion from a specialist, and how to evaluate one treatment option over another.
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