The Scleroderma Society of Ontario, a registered charity, was officially established in 2007 and is committed to promoting increased public awareness, advancing patient wellness and supporting research in Ontario's scleroderma community. The reasons why the SSO exist can be summed up in one overriding priority:  Supporting people with this disease in their quest for information, connections, advice, and yes, a cure!

Improved quality of life for scleroderma patients and their families through education, support, research and increased public awareness. 

The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.

Integrity in our governance process and transparency in our communications;

Respect and compassion for our colleagues and those we serve;

Commitment to achieving our vision through inclusion and collaboration with others;

The business of the Society shall be conducted without monetary gain for it’s Members or Officers, and any profits or other accretions to the Society shall be used solely to support its objectives

By engaging in activities aligned to Scleroderma Society of Ontario's core pillars (Patient Support, Research and Awareness), we will work towards:

  • Developing patient education and bring patients together in peer to peer groups

  • Granting research funding requests and facilitating grant requests for external research funding

  • Increasing awareness of Scleroderma through out annual campaign and activities planned across Ontario

A letter from our President, Marc DiRosa



Scleroderma Society of Ontario is governed by a duly elected Board of Directors.
Executive management is provided by the Executive Director.








Scleroderma Society of Ontario welcomes the opportunity to collaborate with like-minded organizations and groups. Current partners in our vision include:

Marc DiRosa 2.jpg

Marc DiRosa


Rebecca Wissenz


Jennifer Botehlo


Karen Nielsen

Past President

Steve Kulakowsky

Director & Secretary/Treasurer

Silvia Petrozza


David Sauvé


Jason Worron


Vanessa Cook


John Malcolmson

Executive Director

Lacey Battaglio

Manager of Communications & Events

Maureen Sauvé

Vice-President, Advocacy & Public Relations

To play, press and hold the enter key. To stop, release the enter key.


To view our 2019 Financial Statement and AGM Report, please click here.